Friday, August 2, 2013

First WED/RLS Quality Care Center Announced!

To better serve its members, the Foundation will maintain a directory of healthcare providers who have expressed interest and/or knowledge in the treatment of WED/RLS by being certified as WED/RLS Quality Care Center provider. 

We are proud to announce our first certified WED/RLS Quality Care Center!


The Johns Hopkins Center for Restless Legs Syndrome
5501 Hopkins Bayview Circle
Baltimore, MD 21224

Appointment Scheduling Information:
Contact: Robin Fishel
Email:  rfishel2@jhmi.edu
Phone number: 410-550-0574

Certified Healthcare Provider(s):
Christopher J Earley MB, BCh, PhD, FRCPI
Richard Allen, PhD

Want to know more about our Quality Care Centers. Visit http://www.willis-ebom.org/quality-care-program.

6 comments:

  1. Congratulations to The Johns Hopkins Center for Restless Legs Syndrome, and to the WED Foundation for starting this certification program.

    As more centers and providers join the program, more patients will experience the relief of proper care (and avoid the preventable horrors of augmentation and ICD). This is the beginning of a much-needed shift in the way WED is treated.

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  2. After traveling 2,000 miles, I was fortunate enough to be evaluated by Dr. Earley at this center a couple months ago and it changed my life. I have suffered for over 19 years, and have never experienced the relief of symptoms that I enjoy since his treatment. If there were a star rating system for this center, I would give them 5 out of five! I salute their work!

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  3. I was treated for my very severe RLS by Dr. Early for approx. 4 years (sent there by my local specialist). I considered the care by Dr. Early to be exceptionally good but when Obama Care started, I was told that because my Retirement Insurance from the PA State Police was tied to Medicare, I could no longer be treated at Johns Hopkins because they do not accept Medicare. I have returned to my local specialist and he is doing everything he can to help me. Thank God he is very caring and works to keep up with the newest options/treatments. Unfortunately, there doesn't seem to be anything which can help me. I walk the floor (or sometimes crawl) most of every night to relieve the pain. I am 80 years of age and so horribly tired and limited in my life abilities and lack of rest and sleep that my life is basically wasted. I can't visit my children, grandchildren or great grandchildren because I can't travel more that about 20 miles before my legs start in and then I must turn backward in the car seat and sit on my knees to tolerate the pain and jerking. RLS is inherited from my father's side of the family and I have suffered with it since about 10 years of age. The only way to find any relief is to have my weight on my feet/legs and have them moving. My life has been basically destroyed by this disease. I am praying for help.

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  4. Charlotte, Thank you for sharing your story. I pray that you will find some treatment so that you can live your remaining years with relief from RLS/WED. I also hope that Obamacare will not make treatment impossible for the millions of senior citizens, like me, who are currently suffering.

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  5. I hope we seniors and others of course can find relief. I've had RLS/WED for more years than I care to think about. The NO sleep is horrid and when I tell you I only get 2 to 3 hours of sleep a night, I wonder how I get anything done. I'm wearing out at age 66 and I also have Neuropathy caused by a severe medication reaction. I'm in constant pain and with no sleep I felt there was nowhere for any type of relief until recently. I'm calling there after Christmas and keeping my fingers crossed that I can get help so I'm able to get some kind of sleep. I pray for all suffers' of RLS/WED. I agree about Obamacare Charlotte and Good Luck to Everyone.

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